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National Data Opt-outs

Your health records contain a type of data called confidential patient information. This data can be used to help with research and planning.

You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.

Please note your choice will only apply to the health and care system in England. This does not apply to health or care services accessed in Scotland, Wales or Northern Ireland.

 

There are two main types of opt-out for your data

Type 1 Opt-Out – Medical records held at your GP Practice

If you do not want information that identifies you to be shared outside the practice, for purposes beyond your direct care, you can register a ‘Type 1 Opt-Out’. This prevents your personal confidential information from being used other than in particular circumstances required by law, such as a public health emergency like an outbreak of a pandemic disease.

 

Type 2 Opt-Out – Information Held by NHS Digital

If you do not want your confidential patient information to be used for research and planning, you can opt out of this. If you do opt out, there are some specific situations where your data may still be used. Data that does not identify you may still also be used. Your confidential patient information will still be used to support your individual care. Any preference you set using this service will not change this.

 

If you wish to exercise your right to withdraw consent under either opt-outs listed above please visit the ‘Your NHS Data Matters’ website for further details (www.nhs.uk/your-nhs-data-matters) or telephone: 0300 303 5678 where you can find out more about data sharing and set a National Data Opt-out. If you do not wish to opt out, you don't have to do anything at all. Please note you can change your preference at any time.



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